• The mystery of why some people develop ALS
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      20 February

Johnson reported he contacted Dr Merit Cudkowicz after watching an interview with her and the late actor Eric Dane, who died in February less than a year after disclosing he had been diagnosed with ALS.

“She was willing to think more creatively, offering experimental treatments that might help and advance research,” reported Johnson.

“We’ve been with her ever since, and that changed the course of our fight.”

Johnson, who also had spells with the New York Jets and Arizona Cardinals, now uses a speech-generating device to communicate.

“I want people to understand just how quickly ALS can attack your body,” he added.

“I can’t even hold a cup if I try, and that’s despite being diagnosed relatively early and doing everything we can, including participating in multiple experimental treatments.

“That’s why early detection, more research, and better treatments are so important. We have to give people a better chance than what’s available today.”

  • Details of organisations offering help and support with MND are available at bbc.co.uk/actionline.

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